One of my readers is wondering if any of you have FDEIA and would like to chat with others that do have this. Please read her message below and add comments below or contact me if you would like to be connected.
“Hello, like you, have been living with asthma and anaphylaxis related to peanuts and nuts since birth. I have no issue with any of these; I am so used to them they don’t bother me anymore. Since grade 8 I have also had sensitivities to something which was first assumed to be soy or legumes, but which I now believe to be some chemical or additive in processed foods, in particular meats. This doesn’t bother me too much, as it only causes uncomfortable but not life-threatening reactions. For the last few years however, I have a new one to add to the list (new ones aaalll the time – such a blast!). I have diagnosed myself with food-dependant exercise induced anaphylaxis. This is based on (so far) 6 different episodes. I know my body and I listen to it by now. All my symptoms match, but when I tried to explain this to emergency personnel or to two different allergists, they dismiss me by saying I must have come into contact with nuts. I’m sure you’ll agree with me that after a lifetime of avoiding our allergens and living in my own apartment which is completely allergen-free, this is not a possibility. I always have an Epipen and also a very attentive husband who always exercises with me. I’m just wondering if you have contact with anyone else who has this condition, diagnosed or not? I’d even consider some doctors who would be interested in studying my case, not necessarily for my own benefit but maybe they could learn something about it. Thanks!”